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On
November 4, 1994 a precious little angel fluttered into
our lives. Although Erin Margaret was three weeks
overdue, she only weighed 5 lbs., 9 oz., and was 17 1/2
inches long. She looked like a little doll—lots
of dark hair and absolutely perfect!
Erin
was born by emergency c-section due to the placenta
separating prematurely. Her doctors thought from
the start that there could be a chromosome problem
because of her low birth weight and her overlapping
index fingers. But we thought they were just being
overly cautious. After all, we had four healthy
kids at home—why should this one be different?
At
Erin's two week check-up her test results were back:
Trisomy 18! Like everyone else, we had never heard
of it before. Chromosome problems were supposed to
be things like Down Syndrome—something we had heard of
and could deal with! And definitely not something
fatal!! Of course, we were given a very gloomy
prognosis, so we didn't even know if our sweet little
baby would live until Christmas. We were told that
20-30% of trisomy 18 babies die in the first month, 50%
by the second month, and 90% die before their first
birthday. Instead of dreaming of Erin's graduation
or wedding, we had to wonder if we should be thinking
about her funeral.
We
started weighing Erin once a week and watched her gain
weight very slowly. We own a meat processing
plant, so we have very accurate scales. Every
Tuesday my husband Kim would bring a small digital scale
home. On the day Erin was too long to just put on
the scale, and had to be put on a blanket-covered cookie
sheet on the scale, we rejoiced! We found our joy
in some very strange things, but these are the things I
can look back on and smile. As she reached one
month, and then two, our hopes soared! For the
most part Erin did very well. She had sniffles a
couple of times. Then at four months she started
loosing weight. In four weeks she lost seven
ounces. I talked to her doctor about giving her a
high calorie formula from a bottle(she was usually
breast fed), and in two weeks she gained eight ounces!
Her all time high weight was 6lbs., 13 1/2 oz. Her
doctor also had a chest x-ray done to rule out
pneumonia, and it showed her heart to be very enlarged.
It was also shaped a bit different.
When
Erin was almost six months old she had a slight cold and
wasn't eating very well. We took her to the doctor
who gave her medicine and sent her home.
On
the morning of May 4, 1995, Erin died in my arms at
around 6:50 a.m. It happened so fast. I
always worried that she would die during the night and I
would forever wonder if I could have done something.
So it was rather comforting that she was in my arms and
awake when it happened. It crossed our minds to
try CPR, but we knew she was gone. We knew from
the chest x-ray that her heart was in bad shape.
We held and said our good-byes to our little Erin for a
couple hours. And Adam and Brenda held her.
We think this was helpful in coping with it. When
I die I hope I go as peacefully as Erin did. It
was like closing a curtain—she was there, and then
suddenly she was gone.
When
we were ready we called the sheriff, and he and the
funeral director came to our house to get her.
Since my husband had worked in law enforcement part-time
for a number of years, the sheriff was a good friend of
ours. When we first found out about Erin's
condition my husband talked to him and asked him what to
do if she died at home. He consulted with the
coroner, and they advised us to get a letter from the
pediatrician stating Erin's problem and what was
expected to happen. This would avoid the need for
an autopsy.
Erin's
funeral service was beautiful. A young friend of
ours sang " The Dance" by Garth Brooks, which
really said everything we were feeling: if we had
never had Erin we would have missed the pain of losing
her, but we would have missed the beauty of having her
those six months, and it was a very precious
"dance".
Adam's
and Brenda's friends and classmates, and the school
administration attended the funeral. Also all the
county law enforcement—sheriff's department, state
troopers, and the game warden. It was so
thoughtful—that's the beauty of living in a small
community.
Erin's
remains were cremated and although we had planned to
bury them on our property, we instead put her urn in our
glass case with my angel collection. As Kim said:
All of our best angels are in there. We do have a
memorial headstone for her, and Kim and Adam built a
rock wall around that area. I'm working on a
flower garden there. At Christmas we decorate the
evergreen tree by her stone with white lights in Erin's
memory.
Although
we didn't get the healthy baby we planned for, Erin
meant the world to us. She was so precious!
We're thankful for the time we had with her. How
many people are lucky enough to have an angel live
with them for six months? And it was a good
six months. Erin was never really sick and could
eat normally. She never knew the pain of tubes or
needles. And we're thankful she was at home in our
arms when the time came for her to be passed over into
God's arms. I used to pray to God to make Erin
well, but if He couldn't make her well, to take her
swiftly and painlessly when the time came. And
that was the part of my prayer He chose to answer.
I
learned so much from having Erin in my life, and
hopefully I'm a better person because of her. I
always thought Erin had such very wise eyes for such a
little baby. I don't know if I believe in
reincarnation—I think it's a very interesting
concept—but if I were to believe in it I would think
Erin was a very "old soul" because of the
wisdom in her eyes. I also learned that you never
get over the loss of a child, but after a while it hurts
really bad less often. And that is the point
we have finally reached.
Loved
and Missed by her parents, Kim and Gloria,
and siblings, Loren, 26; Adam, 25; Brenda,
21; Ashlyn, 10.
*Ashlyn
wrote the following poem in memory of her baby sister
Erin,
whom she was just old enough to remember:
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Erin,
An Angel
Erin
was my little sis,
She's the one I really miss.
If she were still alive
For her I would really strive.
If
she were alive, I'd watch over her
Because she was my little sister.
When I look at the stars and moon
I ask, "Why did she die so
soon?"
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